It will become less bright and fade away into a grey splotchy sort of thing. Sometimes however, the spot will not subside. Untreated, the spot may subside on its own over a period of minutes to hours. It looks so similar to this that it can sometimes be difficult to tell whether a particular "bright spot" actually is an after-image from a bright light, or if it is the disease presenting itself. The spot appears similar to the after-image of a camera flash, or as if you've caught a brief glimpse of the sun. If you focus your vision on a single point in space, the spot will always appear in the same location relative to that point. The spot does not wobble or change location within your visual field. The disease can impact both eyes, but unless a significant "attack" is happening, typically only one eye is affected at any given moment. Spontaneously, a bright spot will appear in a seemingly-random location within one eye. They may also pertain to you, so I will phrase the answers as if they do. The answers to all questions below pertain to me. Regardless of your insurance status, it is vitally important that you find an ophthalmologist or neuro-ophthalmologist and talk to them about your condition ASAP because failure to effectively treat it can result in blindness. If you have not already, talk to your doctor. The treatment is my own invention, and has worked for me. I've spoken with many, and the information about the mechanisms behind this disease is pieced together from my conversations with them. The more people who have this disease, the likelier it is that physicians will research it. Please DO post your story to this subreddit. Please do not message me asking if I have any updates or new information-if I learn anything new, I will sticky it to this subreddit. I'm going to try to post everything here. I receive new messages every month or two asking me for updates and information. But you may be able to halt its progression by treating it whenever it flares up. To the best of my knowledge, the disease itself will not go away. As far as I can tell, it is not described in the medical literature, and doctors seem completely unaware of it. Pending a definitive diagnosis, I call this disease Retinal Migraine With Infarction. Paracentral Acute Middle Maculopathy.Īn optical coherence tomography finding seen in patients with retinal capillary ischemia and unspecific persistent scotomas. At any rate, it's the closest description I've seen in medical literature. Update: Thank you to the user who reached out to me with this-we may have a disease name. Tl dr for everything that follows: if you have the same disease that this subreddit was created to describe, you may not have to go blind.
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